Logo of the National Institute for Health Research, who make this site possible
We'd like to welcome you to our new website for SCAD research in the UK and Europe. The site is being developed and hosted by the team at the NIHR Leicester Cardiovascular Biomedical Research Unit, under the clinical direction of Dr David Adlam, a senior lecturer with a special research interest in SCAD. SCAD (Spontaneous Coronary Artery Dissection) is an unpredictable event, with patients usually presenting with a sudden unexpected heart attack. It can affect all age groups and is recognised as a cause of heart attacks in young adults. Both sexes can be affected but it is more common in women, in particular during or soon after pregnancy. Sadly some cases of SCAD are fatal. 

The SCAD UK and Europe research portal is part of an international collaboration of patients, doctors and scientists to undertake research into this condition. If you have had SCAD and wish to participate in research to help understand this condition please register. Our research team will then contact you with further information. Registration does not commit you to participate. If you are a medical professional and have a patient who has had SCAD please advise them of our research program.



Christine embraces life after SCAD

I'm now over five years post SCAD, just coming up to 55 and the happiest I have ever been in my life. So what's changed? 

1.     I got healthy through eating well and exercising moderately (gardening, yoga, walking, badminton).

2.     I chucked my stressful job and now write a 50 plus lifestyle blog over at https://flowerpowerlife.wordpress.com/

Jamys’ story

I had chest pains in the morning of 28th October 2013, a couple of days after quite a tough run. I then carried on as normal through the day with no other pain. That night I was woken up with worsening pains in my chest. I tried to adjust my position so that I could go back to sleep, but the pain increased until I was on the floor. My wife took me to A&E where the Troponin test showed I had had a heart attack.

Gill's story

I had my first SCAD event on 11-Apr-2013. I was 50 years old and had been back to full time work for two months after suffering from severe depression. So was feeling really good, had lost weight and was fitter than I had been for years.

I had been busy at work that morning and I was making a cup of tea at lunch time. While talking to a colleague I started to feel unwell. A real aching in my jaw and a bit lightheaded. I went to my desk and sat down. But I started to feel worse...pain radiating in my shoulders, nausea. So as I thought I was going to be sick I went to the toilet.

Katrine’s story

I had my first SCAD heart attack January 2014, I was in Denmark on vacation and preparing my luggage to return to Italy, when I felt a strange feeling in my chest (no pain) and that my left arm “fell asleep” it only took a few seconds, and then disappeared but something told me to react so we called 911 to ask what to do and they send an ambulance right away. In the hospital they took 2 blood test (12 hours one from the other) for enzymes but both turned out negative, also EKG was perfect, and I felt “normal”.

Gabrielle's story

The ambulance snaked through the traffic with the deception of apathy. I knew it was dodging cars at full pelt, but the 20-minute journey seemed to take forever. The paramedic busied himself with an in-journey ECG which could be sent wirelessly ahead to the ER department of the local district hospital. Both he and the driver were stumped and their confusion, and concern, was palpable.

Anna's story

I'm a 39 year old teacher living in Hertfordshire with my partner and our 5-year old son.

Last year (2014), about August time, I experienced SUDDEN CHEST PAINS following some fairly strenuous housework. I assumed they were INDIGESTION, but they were severe enough to make me nauseous and they lasted a few hours. My chest was sore for some days afterwards.

Jennifer's story

I am a 41 year old nursery nurse and I had my SCAD on 6th November 2013. It came completely out of the blue when I was at my work.  Apart from mild asthma years ago, I had no previous health problems. One minute I felt fine, the next minute I felt nauseous, warm and faint.

SCAD research study begins....

The wait is over. The SCAD study is about to begin. Over the next few days, Dr Dave Adlam and his team at Glenfield Hospital will be starting the process by sending out forms to those who have already registered their interest via the link on this website. Your participation is greatly appreciated.

Louise's story

At the age of 37 I had 2 episodes of a heart-burn pain which travelled down my left arm and the second of these was while I prepared to go to an aerobics class. I felt a fluttering under my rib cage, and fear led me to phone 999.

Steve's story

16-Feb-2014: I was out on a 77 mile cycle ride. The 3rd hard ride in four days. Not what you should really do for a training program (too many hard sessions too close together). At 40 miles, I was 10 mins into a 30 min mountain climb when I experienced a numbing pain from the middle of my chest which spread to my upper arms making them feel floppy.

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